Every morning I wake up with Lupus. In addition to being a debilitating disease, she’s become an annoying, yet personal friend of mine. Every morning, I write as well. Writing with Lupus can be a trial sometimes. Just when I think I’m getting somewhere, there she is to taunt me again. Lupus just hates for me to get any work done. Are the symptoms of Lupus keeping you from doing your writing job? Here are a few issues that Lupus might throw at you and how to handle them.
Writing through the pain
Some forms of Lupus involve muscle deterioration and pain. Lupus can also cause rheumatoid arthritis, which, when it comes to pain is a real beast to deal with. I’m one of those lucky people that has both conditions to put up with. But, let’s face it, I’m also lucky that writing is a job that can be done most days, even when the pain would not allow me to work at another. So, when I can, I just write through the pain.
Don’t get me wrong.
There are also many days when the pain is so great, even writing is impossible. On those days, I simply call it quits and start over the next day, or in a week, depending on how I feel.
What about missed income?
Whenever I feel up to it, I write “like a maniac” to make up for lost time.
Often, while sitting at the keyboard, I find my head nodding. My eyes close against my will. That’s just Lupus, saying hello. When extreme fatigue hits, there’s nothing to be done but to take a nap. I try to look at it positively. After a nap, I’ll be able to write more productively. And I certainly can’t write while half asleep. I know. I’ve tried.
Reynaud’s Syndrome and writing
It’s not easy. Still, you can write through Reynaud’s. Reynaud’s causes your fingers and toes to go numb, pale and cold. I write with my fingers, of course. Hence, the problem. I have used a voice recognition program when this symptom hits. But mostly, I just keep writing until my blood starts circulating. It’s a healthier solution.
Lupus and inflammation are best friends. Inflammation causes swelling. When my feet swell from Lupus, I do what anyone does for swollen feet. I put them up. Writing in a recliner helps. Thank goodness for laptops! I also do my best to keep my feet from swelling in the first place.
- Stay hydrated
- Avoid tight fitting shoes and socks. (I like slip on shoes.)
- Avoid foods that cause inflammation.
- Get regular exercise.
- Take your meds regularly
Before I got Lupus, I spent a lot of time writing outdoors. I’m lucky that I don’t have the type of Lupus that requires I stay out of the sun entirely. Still, staying in the sun for long periods makes me incredibly tired. Lupus patients often lack Vitamin D, which is best obtained from the sun. So, I just get my sun in short bursts. Sometimes I take my laptop out with me, but honestly, since I can’t stay out that long, I use outdoor time for breaks. Lupus patients with greater sun sensitivity might opt to take a supplement and stay indoors to write.
Writing on all-over bad days
Some days I get bombarded with every Lupus symptom known to man. What can I do? Well, writing isn’t just about pumping out articles. Sometimes on bad days, I stick to jotting down titles only. Some days, I take off entirely. A writer’s mind is always going anyway, no matter how sick they are. So, even when I’m off, I’m still working in my head. Those ideas can be set down on paper once I’m feeling better.
More from Jaipi:
Alternative Medicine for Lupus
Recognizing Lupus Symptoms
Diet and Nutrition Tips for Lupus Patients