My experience with Lyme disease and how I was diagnosed is quite different from the typical story. Most people get Lyme disease from a tick bite, but that was not the case for me.
My story actually starts with my husband. He had been sick and had lumps that he thought was was a hernia at first. We went to the ER and the doctor there told him they were swollen lymph nodes and sent him home. After a couple weeks, he became very sick with a high fever, sore throat and the swollen lymph nodes.
We went back to the ER. His fever was climbing, he was bright red and just laid in the fetal position. My husband hardly ever got sick, and never like this, so it was a bit frightening.
The doctor we had this time ran every test possible. They sent us home with some medicine and said we would hear back in a week or two. Three weeks passed and we hadn’t heard anything. I decided to call and found out he had Lyme disease and needed to see a doctor soon.
We had some friends who also had lyme disease and referred us to their Lyme specialist. We scheduled with him and had to wait six weeks. He is the number 1 Lyme specialist in the nation.
Lyme disease comes with lots of blood work and medication. When we found out that he had Lyme we decided to get me tested just in case. We got the results that I also had Lyme about a week after I suffered a miscarriage at 13 weeks.
We scheduled an appointment for me with the specialist as well. When talking to him about the miscarriage, and that the doctors couldn’t find anything wrong with me or the baby, he told us that he has treated many women who suffered a miscarriage caused by untreated Lyme disease.
He also told us that I got Lyme from my husband.
It can pass from a man to a woman, but not the other way. I was pregnant two months after the miscarriage, so he had me on a high dose of medication throughout my pregnancy to ensure that it did not pass to the baby.
We had to track how we felt every month and different symptoms to report at our monthly appointments. My husband was on medication for around 5 months when he finally started feeling well enough to be done with his medication. I was on medication for 10 months.
Lyme disease weakens the immune system, so anytime my husband got sick it took him twice as long to get better. Every once and a while it had flared up again, but it has now been 3 1/2 years since the diagnoses and we haven’t encountered any problems with Lyme recently.
It was a long, tiring, and frightening road, but we made it through. Our symptoms were not the typical lyme symptoms, so it was good for us that we had a doctor that ran all tests, or else we both could have been much more sick.
Keep your eye out for symptoms both normal and not. Don’t be afraid to ask your doctor to be tested for lyme. It’s better to be safe than sorry.