The Big C Support
When people first find out they have breast cancer, they may feel overwhelmed, vulnerable, and alone. And even though they might have a close one to support them, people must also learn how to cope with the stress and try to understand complex medical treatments and then choose the best one. And one possible way of doing this is seeking opinions from medical experts and from people who have been through or are going through the same. The following online cancer support communities try and help patients and close ones deal with cancer and live a healthier life.
American cancer society
For more than 40 years, the American Cancer Society’s Reach to Recovery program, which gets the patient in touch with a volunteer, who is a breast cancer survivor, lets the patient and the family express their feelings, concerns, fears regarding breast cancer, has helped people (female and male) cope with their breast cancer experience. Their website gives out a lot of information patients will require from medical experts. On signing up, the facilities of receiving newsletters, email updates is available and patients can also access blogs to share their experiences. The website also has a 24 hour helpline number.
Breastcancer.org is a nonprofit organization dedicated to providing reliable, complete, and up-to-date information about breast cancer. The website has discussion boards, blogs and chat rooms for patients and families to interact with people with similar experiences. Podcasts featuring medical experts are also available for listening. The website gives out step by step information regarding the different stages of cancer, the appropriate treatment and procedures and the side effects if any from them. Patients and close ones can sign up for email updates, community newsletter, booklets and etc. and also to share their experiences and address their concerns.
Cancer support community (CSC)
CSC’s website is easy to navigate and is bound to give visitors detailed information. On signing up newsletters and many other additional reading materials are available and patients can also avail the ‘distress screening’ program which provides the patient with a Personal Support Care Plan with information and referrals after completing a 25 item screening tool on any computer or tablet. The website also has a radio show, ‘frankly speaking’, which has medical experts and survivors to share information and advice on how to live a better life with cancer. The website also has a free mobile app which can be downloaded to keep track of any physical or mental distress.
The pink link website will not only let users gather information regarding cancer but it also conducts regular surveys with their users of the website, patients and survivors of cancer and the insights are used to design trainings for medical providers and therapeutic materials for patients. They have a very up to date news column which gives out the latest information regarding breast cancer. Patients and close ones can sign up for additional newsletter, reading materials or share their experiences with others and can get their concerns addressed by a medical expert. They hold regular events thus making the website really interactive.
Association of cancer online resources (www.acor.org)
ACOR is a unique collection of online cancer communities designed to provide timely and accurate information in a supportive environment. ACOR online communities are for parents, caregivers, family members, and friends to discuss clinical and nonclinical issues and advances pertaining to all forms of a specific disease. It is home of 200+ support groups and users can browse through them and pick one which they feel is pertinent and comfortable with. The communities give out information regarding cancer and lots of relevant testimonials from patients and survivors of cancer. It plugs you into a continuing network within which you can both ask for help and be of help to others.